Praying My
Way Through
ALS
Living with slow-progressing ALS for 20 years — sharing the hard chapters, the funny chapters, and the grace-filled ones. Every Tuesday.
20 YEARS STRONG
HI, MY NAME IS KATE
Wife. Mother. Grandmother. Warrior.
I'm a wife, mother, grandmother and sister, and have been living with slow-progressing Upper Motor Neuron Dominant ALS for 20 years. My story is a tapestry of blessings and challenges, courage and loss — and last but not least, humor.
There is a surprisingly large gap between what neurologists explain and what patients need to know. The neurologists cover the science and God handles the rest of the curriculum.
THE QUIET BEGINNINGS OF ALS
Start Here: My Three-Part Origin Story
PART 1
Ignorance Was Bliss
No sooner did I feel it than I'd forget about it. It's only by looking back that I can piece together the first few years of my symptoms. Denial is a gift.
Read Part 1 →
PART 2
One Small Sentence
I walked into that room positive I would leave with a hopeful, treatable condition. Instead, ALS slammed the door shut on my dreams — all in one small sentence.
Read Part 2 →
PART 3
When Irony Roars
The irony of my ALS diagnosis was staggering. I couldn't help but think of the cruel twist of fate it would have on my husband — and on all of us.
Read Part 3 →
FROM THE BLOG
Recent Stories
10 Things You Might Not Know About Me
People You Should Know
Highlighting Disabled Creators & ALS Awareness
I shine a light on creators, resources, and people doing extraordinary things — because their stories deserve to be told. From adaptive fashionistas to ALS warriors, these are the people I think you should know.
Fighting Back
ALS United Illinois
Leading the fight to treat and cure ALS through global research and community support. I've walked with them, laughed with them, and never walked alone because of them.